ASD & Incontinence: What Is The Link?

by Helen Rankin April 16, 2025

This is another newsletter inspired by comments on Tova Leigh’s recent reel.

I knew that these was a link between autism in children and late toilet training / incontinence, however I wasn't aware that this often continued into adulthood.

Incontinence is a topic that many shy away from discussing, but for adults living with Autism Spectrum Disorder (ASD), it can be an especially sensitive and complex challenge.

While much of the focus around incontinence and ASD has traditionally been on children, it’s important to recognise that many adults with ASD continue to experience bladder and bowel control issues well into adulthood.

At Secret Whispers, we believe no one should feel embarrassed to talk about this — and more importantly, there are steps you can take to regain confidence and control.

Let’s explore the connection between incontinence and ASD in adults, and how simple, effective tools like Kegel weights can support pelvic floor health.

Understanding the Connection Between ASD and Incontinence

ASD is a neurodevelopmental condition that affects communication, behaviour, sensory processing, and how individuals interact with the world around them. For adults with ASD, sensory sensitivities and neurological factors can play a role in continence challenges.

Here’s why:

Sensory Processing Differences: Many autistic adults experience either heightened or reduced sensitivity to internal signals from their body (called interoception). This can mean they don’t always recognise the urge to urinate or that the bowel is full.
Anxiety and Routine Disruption: Changes in routine or heightened anxiety levels — both common in ASD — can increase urgency or contribute to stress incontinence.
Motor Coordination Challenges: Delays in motor responses or difficulty with the physical process of toileting can also be a factor.
Medication Side Effects: Some medications used to manage co-occurring conditions like anxiety or epilepsy may contribute to bladder control and fecal incontinence issues.

It’s a multifaceted issue — and it’s vital to approach it with understanding and compassion.

The Emotional Impact: It’s More Than Just Physical

Living with incontinence can feel isolating, and for adults with ASD, these feelings can be intensified. Sensory sensitivities may make the feeling of leaks or wearing pads especially uncomfortable. There’s also the social anxiety around managing accidents in public or in the workplace.

That’s why it’s so important to have reliable, body-friendly solutions that help to strengthen the pelvic floor and reduce the frequency of leaks.

How Kegel Weights Can Help Strengthen the Pelvic Floor

At Secret Whispers, we’re proud to support people on their journey to better pelvic health — and our award-winning Kegel weights have been a game-changer for thousands of women, helping to tighten their pelvic floor.

Kegel weights are small, weighted devices that you place inside the vagina to help strengthen the pelvic floor muscles. When you use them, your body naturally engages the correct muscles to hold them in place, giving you an effective and targeted workout.

For adults with ASD experiencing incontinence, Kegel balls can offer:

Improved Bladder Control: Strengthening the pelvic floor helps reduce leaks and urgency.
Routine and Predictability: Adding Kegel exercises to a daily routine can bring a sense of structure, which is often reassuring for people with ASD.
Gentle Sensory Feedback: Some users like that Kegel weights make it easy to find your pelvic floor, helping to build body awareness over time.
Confidence Boost: Your weights are gradually increased, meaning as pelvic strength improves, so does confidence in managing symptoms day-to-day.

The beauty of Kegel weights is that they require just a few minutes a day — yet the benefits can be life-changing.

Tips for Getting Started With Kegel Weights

If you’re considering trying Kegel weights, here are some supportive tips to help you get started:

Start slow and listen to your body. Gradually build up the time you use them, starting with just a few minutes a day.
Follow a guided plan. At Secret Whispers, we include a step-by-step guide to pelvic floor exercises with every kit to make it easy and stress-free.
Consistency is key. Aim to use your weights regularly to see the best results.
Don’t hesitate to seek support. Pelvic health physiotherapists can offer personalised advice and reassurance.

Let’s Talk About It

Incontinence is a common and manageable condition — and it’s time we start normalising the conversation, especially for adults with ASD who may feel overlooked. At Secret Whispers, our mission is to empower you with tools and knowledge to take control of your pelvic health and live life confidently.

If you or a loved one is living with ASD and facing bladder leaks or issues with bowel movements, know that you are not alone. Kegel weights could be a simple, effective step towards reclaiming your freedom and comfort.

💙 Start today with Secret Whispers 6 step programme below and give your body the support it needs from the inside out.

If you have any questions or need more information, feel free to reach out. We’re here to help every step of the way.

For more tips, check out these related blog posts:

➡️ Fancy a FREEBIE? Download our FREE guide The easy way to get a stronger pelvic floor

About the Author: Secret Whispers was founded by Julie Colan, a passionate mum and health advocate who saw the need for effective pelvic floor solutions. Now, Helen Rankin, the founder of Cheeky Wipes and Cheeky Pants—known for her award-winning work in sustainable product development—has taken the helm at Secret Whispers. Helen is committed to advancing the company’s mission, believing that women shouldn’t have to accept incontinence as a given. With the innovative Secret Whispers Kegel weights, she aims to offer every woman an effective, reusable solution for pelvic floor health. Try them and take control of your wellness journey today!